The super-human parent juggle!

Sometimes I worry that what we see on social media isnt ‘real life’. We project the best versions of ourselves and try to look like super-humans, and often-times life can be so very different. That’s one of the reasons I wanted to do this story with the NZ Herald.

Being a single mum with a busy career is a full and rewarding life. I have many amazing supermum moments where I high five myself. Many days I juggle PR campaigns, run my beauty business, mentor juniors, make lego rocketships with my son, fit in a yoga class, cook an awesome dinner and fall asleep after meditating. But some days my car breaks down, my son is sick, technology is fickle and my work is so piled up so high that I don’t know where to start.

So when you start loading things on top of this, like major surgeries, recovery time, and trying to take care of children on your own – things can be pretty tough.  Through this blog I have met some amazing women. Many of them facing mastectomies and major surgery and most as single parents. I hope to see more general support available for these parents, and in paticular more short term benefit options so they can get through these tough times and avoid ending up on long term benefits.


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Single parents struggle in the face of illness

Prominent public relations specialist Anna Jobsz is calling for agencies to offer more support to single parents who undergo major surgeries or illnesses.

Jobsz has opened up about her struggle caring for her son alone, while also recovering from two major surgeries.

After discovering she had a mutated BRCA gene, in April 2016 Jobsz opted to have a mastectomy to reduce her considerable cancer risk.

Months later she had reconstructive surgery. All the while, she cared for her 3-year-old son full time.

Her family is overseas and Jobsz could depend on friends occasionally, but Jobsz was disappointed to be told by Work and Income New Zealand her only options were to receive a long term benefit, or nothing.

“I think most single parents want to keep working despite illness, and they don’t want to get into further debt because they take three weeks off work to recover,” Jobsz said.

“When I came home from hospital I would have friends come over the first few days if they could spare an hour or three away from work, which was a big help, but the hardest part was at night.

“My son would often wake up two or three times in the night because he was unsettled after I’d been away in hospital and at that point I could barely walk and I was still on heavy meds. Getting up at night and lifting him out of his cot was difficult mentally and physically.”

anna & Carlo first day homeShe recalled five days after leaving hospital having to take her son to his own surgery to receive grommets. They were at the hospital all day. The appointment had been a long time coming and she didn’t feel she could cancel.

“I had to drive him, and get him into the hospital in his pram, upstairs in the carpark, and help him through the day while I was on heavy meds and just wanted to sleep. I had waited months for him to get on the operating schedule for grommets, and his hearing was so bad, I had to go. Those moments are truly tough.”

Following her surgeries Jobsz was readmitted to hospital after contracting infections, and at that point the hospital appointed a social worker because they could see she was struggling. The worker said a WINZ staffer would visit her to explore options, but no one showed up, Jobsz said.

After following up she said she was told to call her family, or go on a long term benefit. Dismayed to discover there is no short term option available, she’s calling on the agency to introduce one for solo parents who find themselves in her position- juggling work and a child, and extra costs including medication, childcare, and travel.

Only after her surgeries did ACC contact Jobsz to tell her what payment options she might be eligible for, and Jobsz fears that single parents who don’t think to ask, won’t receive.

She wants WINZ, ACC, and hospital staff to work together to ensure patients like her get the right support.

“I hope that together we can find a solution because with an alarming rate of breast cancer in New Zealand, especially amongst Maori women, I can imagine that many future single mothers will have to deal with this issue. How can we find a way to take care of our parents in a short term way without them ending up on long term benefits?”

A social media post where she spoke about her struggles received strong support from others, including Minister Nikki Kaye, who recently battled breast cancer.

Breast cancer survivor and breast cancer charity Paddle for Hope founder Karin Horen said the gap in support was a major issue.

Horen was first diagnosed with cancer at 26, which returned in her 40s. She has three children whom she cared for after her surgeries.

“There’s people who have no access to anything. You sit in this hospital for days and they don’t give you any idea what you’re entitled to. The problem with cancer is that it doesn’t finish with chemotherapy, or radiation, or an operation. It’s the ongoing effects that you’re dealing with.”

Breast Cancer New Zealand spokeswoman Adele Gautier said breast cancer survivors were often surprised at the financial impact on themselves and their families.

“We have a free healthcare system and getting surgery and drugs is not a problem, but the additional costs can cause a really hard time. It’s a tough situation made even tougher.”

A WINZ spokesperson said it had a range of benefits available for single parents and that what they were eligible for was dependant on individual circumstances. In emergencies assistance could also be provided for accommodation, childcare, and medical costs.

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Pink Ribbon Breakfast @ MR TOMS

Every year NZ Breast Cancer Foundation empowers thousands of New Zealanders to take part in Pink Ribbon breakfasts. This year there were over 3000 breakfasts held in NZ during the month of May.

I held one in partnership with MR TOMS bar & restaurant in Ponsonby. They created a beautiful cooked breakfast, with goats cheese omelettes, salmon eggs bene and gorgeous pink cupcakes.

It’s important to me to support Pink Ribbon because they are the voice of the messages that help save women’s lives. And more than that, their ground breaking research will save countless lives in the future. Right now NZBCF is putting money into researching a vaccine to prevent young women developing breast cancer. That would be such a blessing for our future generations. It would stop Breast Cancer in its tracks, and hopefully eliminate the need for mastectomies.

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Evangelina, CEO NZBCF came and said a few words. She talked about the alarming rate of women getting Breast Cancer in NZ, and the even greater risk for Maori women. I spoke about my journey with BRCA and the breast cancer in my family.

My dear friend Helena McAlpine was greatly missed. She was always the star at these events with her bold messages and insane sense of humour. Hosting these events without her feels a bit like going dancing without my high heels, but it was also a good reminder of how special she was, not just to me but to so many people in the room.

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Helena’s husband Christopher Barton joined us in saying a few quick words of support for NZ Breast Cancer Foundation and there wasn’t a dry eye in the house.
Our brave speaker for the event was Tamzyn Adding, who was only diagnosed with cancer a year ago and has bravely fought through her mastectomy and treatment. She talked about how hard it was to tell her three children about her illness, and how scared she was on her initial diagnosis. But ultimately how hard she has fought to be alive. She is one brave woman!

(Tamzyn on the right & her sister on the left)

I thank everyone who made the effort to come to our special Pink Ribbon event… to listen, to connect and give money to this wonderful cause.

A special thanks to Essano – natural skincare products who donated a beautiful gift for every guest and prizes for the raffle. Along with the NZ Boutique Wine Festival, Tui Fleming from Dear Mummy NZ and Dani Strong from Dani Vitality Nutrition – who all kindly donated to the cause.

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All together we raised over $900 for Pink Ribbon and which was the cherry on top of an awesome event, filled with important messages.

A big thanks to Olivia Mullholland, the Marketing support at MR TOMS who so passionately helped pull this event together.

And to Mianetto Prosecco who put together the sparkling pink Mimosas for guests to drink on arrival.

For more information on breast cancer in NZ check out… NZBCF Website

To work with MR TOMS on an event MR TOMS Website

Mediterranean diet could reduce your risk of Breast Cancer by 40%

We all know that eating a healthy diet can greatly improve our health. And in many cases we hear of ‘wonder-foods’ and superfoods that can boost our health and wellbeing in specific ways. But more recently researchers have started to look at diets from around the world, and the health impact on the people who eat these diets.

This huge study in the Netherlands followed 62,000 women aged 55 to 69 over a period of 20 years. The researchers found a strong link between the Mediterranean diet and reduced oestrogen receptor (ER) negative breast cancer.

Around 20 to 25% of all breast cancers diagnosed in New Zealand are ER negative, that’s 1200 – 1500 women diagnosed every year. According to this study, if we all followed the Mediterranean diet, 40% of those cases could be avoided.

The Mediterranean diet is rich in olive oil, fruit, nuts, fish, vegetables and whole grains, and is already known to reduce the risk of heart disease and stroke.

READ THE FULL STORY HERE!

More information about eating a Meditteranean Diet HERE!

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Canadian Woman raises awareness for BRCA

Canadian woman, Laura Kelly carries the BRCA gene. After losing both her parents to cancer her odds of getting both breast cancer and ovarian cancer were extremely high. A few months ago she had a double mastectomy at Women’s College Hospital in Toronto.

I feel so many parallels with Laura, as though we are living almost the same life in another place.

Check our Laura’s story and her brave message here: http://www.orilliapacket.com/2016/08/25/washagos-laura-kelly-who-carries-rare-genetic-mutation-wants-testing-to-be-more-accessible

Laura’s blog here:  http://www.laurakellybrca.ca/

Laura Kelly

Information from the story:

According to the Canadian Cancer Society, most breast and ovarian cancers are not hereditary. Some women have a family history of breast cancer, but only a small number are due to an inherited gene that increases their risk of cancer.

“BRCA mutations account for about 5% of all breast cancers and 4% to 11% of all ovarian cancers,” the agency says on its website. “Genes are not the only factor that affects cancer risk, so not every woman who inherits a BRCA gene mutation will develop breast or ovarian cancer.”

Pretty In Pink #PinkRibbon

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Photo at the Generator Pink Ribbon Breaky – on my right is Evangelina from NZBCF and in the pink vest is Breast Cancer survivor and BRCA carrier – Karin Horen

Today I was invited to speak at the Generator Pink Ribbon Breakfast. They asked me to share my story about having the BRCA cancer gene and my experience having a double mastectomy.

I was excited to see a few familiar faces in the room and I felt so much warmth and support from people I’d never even met before. It’s times such as these that make me proud to be a Kiwi!

I should also note the strong presence of males in the room. These are men who are brave enough to surround themselves with pink cupcakes and hear chicks talk about boob issues. Good on you boys!

 

They kicked off by playing this video:

http://www.newshub.co.nz/tvshows/story/finding-out-your-cancer-risk-a-hard-fought-battle-2016021119#axzz49ii4L08j

It was weird watching that video back and thinking about the stage I was going through at that point. I was making decisions about my mastectomy and talking to specialists at St Marks. It’s amazing to think how far you can come in just a few months!

Yesterday I sat down to write my story and I wondered where to start? I came to the conclusion that you can only really start at the beginning. So I talked about my first experiences of Breast Cancer as a child – finding out that my mum’s best friend had Breast Cancer and going to see her for the last time. The realization that Cancer isn’t an old person’s illness and that young parents can be taken away.

I went on to talk about losing my father to stomach cancer when he was age 39, and my own mother’s journey with breast cancer. Watching her lose both of her breasts and then the lengthy struggle to stay alive – she has been inspirational to say the least.

The final part was about my own BRCA journey and my experience having a double mastectomy. There’s so much to say about that it’s hard to squeeze into one post.

This morning was tinged with bittersweet feelings. I couldn’t stop thinking about Helena and I realized walking into Generator that it’s the first time I’ve ever been there without her. If those walls could talk! So many parties including numerous breast cancer events, Birthday parties and even a singles party – all with Helena.

It was comforting to have Helena’s husband Christopher at the event today. He never ceases to amaze me with his brave face and total strength of character. Some people deal with a lot in their lives but they always manage to keep on smiling from the inside out.

Now I deserve my pink cupcake!

Kia Kaha

Anna x

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Collecting with Christopher Barton & the Helena gang in 2015

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